ECHO–NIH Workshop

This two-day, virtual workshop focuses on identifying best practices for large-sample studies of pregnancy and childhood to ethically and feasibly return individual research results to participants.

Crosscutting Themes:

• What principles drive return of individual results to pregnant people and children?  What are examples of best practices and how can we evaluate their effectiveness?
• How should recommendations differ for returning individual results to pregnant people and children versus those of other adults?
• Most research on returning individual results focuses on genetics results; how can we broaden to include environmental data from bioassays, physical measures, and self-reports?
• How can the workshop guide facilitation of equity in return of individual results?

VIRTUAL WORKSHOP DATE & TIME

Thursday, March 16, 2023
9:00 AM to 4:20 PM (ET)

Friday, March 17, 2023
9:00 AM to 12:20 PM (ET)